The 22q11 Group
Registered Charity (England & Wales) Number 1046847
The 22q11 Group was founded in England by parents of children diagnosed with Velo-Cardio-Facial Syndrome and Di George Syndrome resulting from a deletion within chromosome 22.
The aim of the group is to provide information, advice and support to families affected by the deletion and to provide a contact register enabling families of children with similar symptoms to contact each other.
Our email address firstname.lastname@example.org
The purpose of this site is to give an overview of the syndrome, and details of the Group.
There are already excellent US sites (see links page) which are currently well maintained and provide further details.
I would welcome positive and negative feedback on the content/style of the pages and any problems encountered with them.
I hope you find the pages of interest.
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Mail The 22q11 Group