Links To Remote Sites
Velo-Cardio-Facial Syndrome
http://www.crosslink.net/~marchett/vcfs/vcfs.shtml
"This web site is devoted to providing information on the syndrome for families and professionals dealing with VCFS and related issues through support group information, links to articles on VCFS and various resources on the web."
A comprehensive site maintained by David Marchette
Paula's Cool Medical Links!
http://www.teleport.com/~vcfsmom/coolmed.html
"Anyone who knows me knows I am seriously into DiGeorge Syndrome, Velo-Cardio-Facial Syndrome (VCFS), and trying to figure out David's intermittent ataxia (balance problems). I do some pretty intense researching on the web, and I wanted to put my links together so that others could find the way more quickly."
Extensive links, maintained by Paula Goldenberg
The VCFS Institute
http://www.kumc.edu/GEC/prof/vcfhome.html
"(The Institute) is an organization of professionals associated with VCSF and its management.
The contact at the Institute is Rosalie Goldberg
The VCFS Educational Institute
http://www.hscsyr.edu/~vcfsef/
"...... the Official Web Site of the Velo-Cardio-Facial Syndrome (VCFS) Educational Foundation. The Foundation is an international not-for-profit, self-help organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners. The Foundation is independent of -- and not affiliated with -- any particular institution.
VCFS -- also known as the Shprintzen Syndrome, DiGeorge Sequence and, regrettably, Catch 22 -- is caused by the deletion of a small segment of the long arm of chromosome 22 (specified as 22q11.2 deletion), and is one of the most common genetic disorders in humans. Velo-Cardio-Facial syndrome is characterized by cleft palate, heart abnormalities, learning disabilities, and over 180 other clinical findings......."
The contact at the Institute is Kelvin P. Ringold
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