Contact addresses and our organisation

Postal contact Chairman, Downsyndrome OK c/o 28, Stopham Road, Maidenbower, CRAWLEY (W.Sussex) RH10 7JF (United Kingdom)

Phone & email contacts : See list below for individuals.
downsyndromeOK website: www.downsyndromeok.org.uk __|__ email: info@downsyndromeok.org.uk
Downsyndrome OK is a Registered Charity number 1099580 , Reg. Company No. 04756272

Shortcuts to information on:- | Email us with Comments/Info/Questions

Our Library Newsletter Editor General advice

website Liaison with DSA

Downsyndrome OK covers members in West and South West of Greater London, Surrey and West Sussex.
All our trustees/committee members & DSA officer listed below are available to our members & those seeking help or support in our area. All trustees/committee members have a son or daughter with Down's Syndrome ranging in age from 1 to 32 years.
We do our best to respond quickly however we work as volunteers so please understand if there is a delay.
Several subgroups meet regularly to exchange ideas, information and support one another. Other affiliates of DSA or groups with similar aims in S.E. England near us are listed below.

**WHO DOES WHAT ? in the TRUSTEES, COMMITTEE:**
Responsibility	Contact details	parent of
Chairman	Mr. Paul Everington 01293 889777 Email paul@downsyndromeok.org.uk	daughter 1997
Vice Chairman & Hon.Treasurer	Mrs. Karen Edmonds 020 8330 1597 Email karen@downsyndromeok.org.uk	son 1994
Hon. SECRETARY	Mrs. Liz England 01932 344482 Email: liz@downsyndromeok.org.uk	son 1994
Newsletter Editor / Minutes Secretary	Mrs. Shirley Quemby 020 8642 3720 (fax 020 8241 3947) email shirley@downsyndromeok.org.uk	son 1971
MINI-LIBRARY	Mrs. Maggie Almrott 01403 257083 Email: maggie@downsyndromeok.org.uk	daughter 1984
OTHER Trustees/Committee members
Website coordinator:- Mr. Ajit Mané 020 8979 7485 email ajit@downsyndromeok.org.uk		daughter 1981
Mrs Janine Brewster	020 8642 5219 janine@downsyndromeok.org.uk	daughter 2003
Mrs Bambina Gonsalves	020 8640 7248 bambina@downsyndromeok.org.uk	son 1996
Mrs Helen Long	01525 718068 helen@downsyndromeok.org.uk	daughter 2001
Mrs Donna Self	020 8393 8685 donna@downsyndromeok.org.uk	son 1997
Mrs Jo Tofts	020 8337 6715 jo@downsyndromeok.org.uk	son 1996

Volunteer & Development Co-ordinator of D S A for S.E. England
Responsible for liaison between the affiliates, volunteers, activities in the area with the national office of DSA. Provides help & support from the resources of national organisation. Liaison with press, professions etc.	Gill Hayes email: gilldsasoutheast@hotmail.com OR via National Office of DSA see below:
Down's Syndrome Association (organisation for England, Wales, N.I.) Reg. Charity 1061474 Reg. Company No. 3310024
Contact for :- (services available from DSA national office) How to become a member, Specialist advice on benefits, health, education issues at national level, Literature, related helpful organisations, other local affiliates of DSA etc.	Down's Syndrome Association The Langdon Down Centre, 2A Langdon Park, Teddington (Middx), TW11 9PS Phone: 0845 2300372 Fax: 0845 2300373 www.downs-syndrome.org.uk email: info@downs-syndrome.org.uk

Other affiliates of DSA or similar groups in areas near us in SouthEast England
Full information available from national office ( see above)

Group in North West Thames area :- Covers north-west of Greater London and parts of (Middlesex, Berkshire, Buckinghamshire) . Contact :-Stuart Kidd Tel: 01442-219047 Fax: 01442-389799 Email website: www.northwestthamesdsa.co.uk
London Branch :- convenient for north, central London. Most members have small children or babies with D S.
See website: www.downs-syndrome-london.org.uk ][ EMail: info@downs-syndrome-london.org.uk Contact:- Ros Innes 020 7435 9679 or Richard Davis 020 8815 0070 or 020 8883 8638
Down's Syndrome Extra21 [formerly North East Thames Branch] :- Covers north-east part of Greater London, Essex and parts of adjacent home counties. Contact :- Deidre Clement 01277 36 5618 or email: downsyndromee21@aol.com
South East Thames Branch changed its organisation during 2002. For current information of active groups in south-east of Greater London, Kent, East Sussex Contact :- ask DSA national office (see above)
] [ Group in Margate

Links to some other DSA affiliates & org.s
Contacts for other affiliates: ask national office

Our Library	Newsletter Editor	General advice
website	Liaison with DSA