123 Golden Lane London EC1Y 0RT Tel: 020 7454 0454
Leading UK-wide organisation for championing the cause
of people with learning difficulties and impairments. Local offices,
volunteers listed in phone directories
Richmond Mencap
Contact Carole Peverett phone 020 8744 1923 for
current programme etc.
Sutton Mencap: YOUTH CLUB, COMPUTER CLUB
This new Youth Club for 16 - 21 year olds with learning difficulties is run by Sutton Mencap on term time Thursdays, 3.30 - 6, in Wallington.
COMPUTER CLUB
Run by Sutton Mencap in Carshalton, this club is for all adults with a learning disability. Saturday mornings 10 - noon.
CONTACT: Telephone Sean 020 8647 8600.
Phone 020 8332 7469 Fax: 020 8334 0472
They produce a guide covering Education, Health, Social Services overviews hints & local
contacts in borough. Overviews useful for neighbouring boroughs too. They run or have access to variety of programmmes,
services, toy library ( informal meet & chat place for parents with
young children), sports for special needs etc. for children and adolescents
around Richmond. Regular Newsletter for parents, carers and professionals
listing events, programmes.
Companion Cycling
Operates from The Stockyard, Bushy Park, Teddington (Middlesex),
Near Hampton Court Palace
Contact: Mrs Kirkham, Answerphone: 0961
344545 to get detailed brochure.
A small voluntary organisation with a novel idea and
adapted cycles (if you think tandems are clever, you must see these ! )
to bring enjoyment of riding through Bushy Park with family to children
& adults with impairments that prevent or hinder them from learning
to ride a bicycle & enjoying a bracing experience.
Values into Action (VIA)
Charity to enable people with learning difficulties to be
in control of decisions concerning their lives. Contact: www.viauk.org/
020 7729 5436
London Sports Forum for Disabled People
A-Z of sports opportunities in Greater London for young people with learning disabilities. 2002 version costs £3 from The London Sports Forum for Disabled People, Ground Floor, Leroy House, 436 Essex Road, London N1 3QP, tel. 020 7354 8666, email: lsf@disabilitysport.freeserve.co.uk Or try any Greater London Borough library.
Greater London Action on Disability (GLAD)
GLAD is a pan-London organisation which campaigns for the rights of disabled Londoners and provides advice, information and training. Contact: www.glad.org.uk
020 7346 5800 email info@glad.org.uk
FRIDA Network
This organisation aims to empower and support disabled
women in London especially as regards gynaecological or sexual health matters.
It is aimed at women with physical or sensory impairments, learning difficulties
or other special needs. 020 7251 6333, email: outreach@womenshealthlondon.org.uk
CRANIAL OSTEOPATHY
Montague-Smith, registered osteopath from Tunbridge Wells, spoke at our Information Day 2000 of this treatment for babies and children (up to age 16) with Down's syndrome. His email address: gms@atmanclinic.freeserve.co.uk and a website: atmanclinic.co.uk
Institute of Child Health: Information Service
Great Ormond Street Children's Hospital has set up an online family information service. It is available through the joint website of GOSH and the Institute of Child Health: www.gosh.nhs.uk
MERU Medical Engineering Research Unit
Volunteer engineers and fundraisers have been doing remarkable work to
help people with a wide variety of disabilities in the West London and
North Surrey area. Their Interface Centre helps "put you & your child
back in control of your computer"
Woking Borough offers a variety of activities suitable for people with disabilities. Their Leisure Centre offers Sensation Sensory Suite, Pick'n'Mix Playstore, Rollerdrome, Sports and Games, Technogym, Activ8 Aerobics, Heatwaves Health Suite and Woking WurliTzer. There are pools in the Park, too. For further details or your specific needs, contact Jacki Wikeley on 01483 771122.
Check what your local Leisure Centre offers & challenge them !
Contact a Family
South West London Region, (covers parts of south as well as west London)
ETNA Community Centre, 13 Rosslyn Road, Twickenham (Middlesex) TW1 2AR
Contact: phone: 020 8607 9058.
or National office,
209-211 City Road, London EC1V 1JN
Tel 020 7608 8700 Fax 020 7608 8701 Minicom 020 7608 8702
Helpline 0808 808 3555 Freephone for parents and families (10am-4pm, Mon-Fri)
e-mail: info@cafamily.org.uk
Web Site: www.cafamily.org.uk
A voluntary charity for supporting families who care for
children with special needs and disabilities. Operates through regional
parent representatives. Arranges useful meetings, talks, workshops for
parents & children; often in cooperation with other organisations e.g.
Scope
PARENTS AT WORK,
1- 3, Berry Street, London EC1V 0AA, (Tel) 020 7253 7243, (Fax)020 7253 6253, Helpline 020 7253 7243
Website:www.parentsatwork.org.uk email:info@parentsatwork.org.uk Waving not Drowning, the newsletter, and
entry in the contact directory are available free. See website for further information sheets or contact Janet
Mearns, address/email above
Kingston Special Needs Project
A Special Needs Group led by parents in the Kingston upon
Thames area. The aim is to foster a greater understanding of the
requirements of children with special needs, and to improve and develop
services for children with special needs and their parents and carers.
For impartial information, advice or support on all educational matters
for parents of children with special needs between the ages of 2
and 19.
CONTACT:The Dukes Centre , Dukes Avenue , Kingston Upon Thames KT2 5QY
Tel: 020 8547 6675 Email: nikki.anghileri@rbk.kingston.gov.uk
Croydon Opportunity Pre-School Group
For children with special needs, this group
provides education and care for the child and support for the whole
family.
For further details & contact information see their website www.copg.org
People First, London and Boroughs
Self-advocacy group of people with learning difficulties.
Local groups active in parts of London and Home counties.Information pack
available from:
Tel: 020 7485 6660
People First Headquarters
299 Kentish Town Road
London, NW5 2JT
email general@ peoplefirst.k-web.co.uk
People First, Sutton (Surrey) area
Contact: Roger Quemby Tel: 020 8642 3720
GROUPS in West Sussex, Hearing impairment, other Special Needs
In Shoreham there is Earmark 2 for profoundly deaf parents/children
under 5 who sign: 01273 26880000; Happy Faces is a similar group in Worthing:
01273 671889 or 01903 528600; also the Earmark Group in Crawley: 01293
895100. This information and more is available from ICIS, the Independent
Combined Information Service on 0800 859929, email: helpline@icis-westsussex.org.uk
or website
www.icis-westsussex.org.uk
For current programme of information days for parents and carers of children with
special needs and/or disabilities. Contact the West Sussex Parent Partnership
Service on 01243 752115 for details. This Partnership runs a helpline for parents, on this number.
"WELLSPRING" magazine for West Sussex
Gives useful information on facilities relating to disability in West Sussex.
Contact: The Editor, "Wellspring", c/o 35 Worthing Road, East Preston,
LITTLEHAMPTON, W.Sussex BN16 1BQ
Independent Living
Independent Living is a non-profit making, online information resource for the disabled and elderly, their carers and healthcare
professionals. Their aim is not to be a selling organisation.
For details see www.independentliving.co.uk
{Contact: Derek Leckie}
OWL Housing
Owl Housing, who provide housing and resources for adults
and young people with a learning disability. Working since 1990
Contact: OWL Housing, 551 London Road, Isleworth, Middlesex.
Tel 020 8569 9131.
HOUSING for people with learning disabilities
Housing Options, is a housing advice service for people with learning disabilities, based at Witney, Oxon. To get their leaflet: Telephone or fax Nigel on 01993 705012, email nigel@hoptions.demon.co.uk website www.hoptions.demon.co.uk
Golden Lane Housing
Their main purpose is to provide ordinary housing in the community for people with learning disabilities. It was established by MENCAP.
London Office - South East, London & East Anglia (Mr. Craig Derry)
Golden Lane Housing
123 Golden Lane
London EC1Y 0RT Tel: 020 7696 5613. Fax: 020 7696 5517
Section on specialist
Classes, shops, services contacts links
Football for children with special needs.
In 2005 the Fulham FC's Soccer Courses for children with special needs are found to be very attractive by some young members of DownSyndromeOK.
Details on their website www.fulhamfc.com/displayContent.asp?id=83738&intAreaID=17 or CONTACT:
Simon Hancox, {Football Development Officer for Disabled People}
Fulham Football Club | tel:020 8336 7542 | fx:020 8336 7574
Nutritional Supplements
Nutri-Chem International (a Canadian company) markets a mixture
of vitamins, minerals and other supplements especially for children and
adults with Down's syndrome.
Their products are available in England from
Hazel White email:UKsales@nutrichem.com Tel. 01903 203317 Fax. 01903 233717
28 St. Thomas Road, Tarring
Worthing (W. Sussex) BN14 7JW
NOTE:You must determine the suitability of any products for each individual case in consultation with your medical practioner.
Allyson Cawood is a ballet teacher in London.
She gave us following information.
" I am interested in teaching classical ballet
to children with DS both in special needs classes and also fully included
in other classes. I have some experience; I have actually put
on Act 2 Coppelia with them.
I am presenting a paper on the enormous benefits of
teaching classical ballet to children with Down's syndrome at the
National Down Syndrome Congress (in Pittsburgh USA in August 1999). I will
also be giving some workshops. "
One of the parents found that:- " .... the shoe
shop, Stepping Out in Pitshanger Lane, Ealing (London
W5) has lots of high quality imported shoes for kids. We got both leather
pre walker booties in size 6 and later boys velcro trainers size 6 there.
Startrite and Clarks only had baby style shoes and we were keen to find
something more suitable (for a 3 year old boy) and with better grip for
the slide, playground etc.
